Time Management in the Caregiver Time Loop

In the US, we are taught from a really young age that our value as humans is tied directly to our production as well, and often caregivers really struggle with feeling like failures because they did not achieve production and perfection. The failure is that you set yourself up that way. The success is when you don’t.

Dementia and Dragons

My mom has always loved fantasy and science fiction. I grew up on the original series of Star Trek. At my aunt’s holiday parties, the kids were always plunked down into the study with Star Wars. She thought E.T. was the cutest thing ever, and bought me the original VHS tape. I was terrified, andContinue reading “Dementia and Dragons”

The Long Goodbye is Bullshit

Here’s why: It focuses on a perceived death (and the very real experience of ambiguous loss) and displacement of a person while they’re still very much alive. It completely skips the living time between diagnosis and death- arguably the most precious time a person has on this Earth.

The Dementia Gladiator in the Shower Arena

“Mom, you gotta get a shower.” “Why?” “Because hygiene, and you smell like you’re Oscar the Grouch’s roommate in the same can.” *Mom giggles* “No.” “Mom, it’s been almost a week. You gotta get a shower. We have to take care of our bodies.” “No. I’m fine.” Meanwhile, she practically has a cloud of stinkContinue reading “The Dementia Gladiator in the Shower Arena”

The Pandemic Parallels Between Caregivers and Healthcare Workers

Any caregiver can tell you that many days are spent just trying to survive, and that the smallest things can create miniature disasters that totally wreck the day on a multitude of levels. Caregivers- or care partners, whichever term you prefer for yourself or a person who is providing care and support to a personContinue reading “The Pandemic Parallels Between Caregivers and Healthcare Workers”

Disaster and Dementia -or- Why I Started this Blog and then Stopped Writing for Six Months

Having one brain to serve two bodies requires much. It’s no wonder, really, that caregivers are always so tired- and why, even if I had somehow found the time, I couldn’t string coherent thoughts together.